Wednesday, July 25, 2012

Fragile X

Fragile X will devastate you, there's no doubt about that.

Fragile X will force you to cope with and understand even the most mundane of situations-never mind the really difficult ones.

Fragile X will make you research and learn a lexicon you had no clue existed.

Fragile X will rearrange your life; the freedoms you once took for granted have now been replaced by therapies that used to belong to others.

Fragile X will teach you a new language-one you speak not with your mouth, but with your hands, because that is what your child needs to navigate this world.

Fragile X will break your heart once and then again a hundred times over.


Fragile X will also bring you joy.

Fragile X will make you smile and laugh until you cry.

Fragile X will make you proud of your children, possibly more prideful than you would have been without it.

Fragile X will show you compassion.

Fragile X will make you look beyond yourself, and once you do, it will bring you closer to those you love, and introduce you to a family you have been waiting your entire life to meet, even if you didn't realize it.

Fragile X will make you shine with every accomplishment-no matter how far behind schedule.

Fragile X will rewrite your story, but don't forget, you are ultimately the author of this book. 

Fragile X cannot determine the ending, only the beginning, because it's up to you to choose happiness, advocacy, education, and learning.

The opposite of this is frankly not an option. 

So, open up your hearts, your minds, and join me on this journey.  The ride may not always be calm, but I assure you, it will be rewarding.  Take it from me, I know, even if only the first few pages of my story have been written, you will love the view from here.  I promise.

1 comment:

  1. really great thoughts! i also love the post about the "r" word...i feel that way all the time. It's amazing how many people use it in my company without realizing how hurtful and unnecessary it is.