tag:blogger.com,1999:blog-55455069751810746.post6930250177413320658..comments2023-05-02T03:09:23.408-07:00Comments on X Marks My Heart: Anonymoushttp://www.blogger.com/profile/01873659332890618301noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-55455069751810746.post-20387261780447833362012-07-25T21:42:27.192-07:002012-07-25T21:42:27.192-07:00I agree, Kathleen! I just saw your post, I must a...I agree, Kathleen! I just saw your post, I must admit, I'm not good at checking the comments (I guess I need to get better about that.) I remember when we first found out about Trek. I sat there for hours looking at him and imagining him without his label and diagnosis, and then, it dawned on me, how could I picture him any other way? When I was picturing him differently, was I doing him a disservice? This is how he is, and he is MINE! No one could change him, even those who prayed for him to be "cured" (genetics must not have been their major), not me, not him, or anyone who loved either of us. But, I could fight for him, for all of us. I could learn as much about fx as I had the strength for each day (you know, some days are much more overwhelming than others and you just HAVE to put the literature down). And, that became my jumping off point. Scary as all get out, but I did it, and I have been rewarded. Having that monkey of "changing" him off of my back was one of the best things I ever did. Now, I'm free to love and cherish him as he is, as he was made, and how he will always be. Each night, when I put him to bed, I kiss his sweet little head and vow that Mommy will try her hardest to make it okay, and with a little help from my friends and family, I have no doubt WE will! I love you for bringing us on this journey with you. You are a Godsend. xoxoAnonymoushttps://www.blogger.com/profile/01873659332890618301noreply@blogger.comtag:blogger.com,1999:blog-55455069751810746.post-49629520503779984582012-07-25T11:32:44.139-07:002012-07-25T11:32:44.139-07:00LOVE LOVE LOVE! Thank you. I've never said out...LOVE LOVE LOVE! Thank you. I've never said out loud I couldn't imagine my life any other way - somehow it seemed 'wrong' to me - his diagnosis is my blessing? But yet...everyday I feel it more. He was sent to change my life for the better. And he has. Much love to you sweet Sarah!Kathleen Quinnhttps://www.blogger.com/profile/02490775018332263049noreply@blogger.com